Ok, so I have a bit of catching up to do. My biopsy was done last Tuesday, but I did not get results until this Monday, Nov 30th. As anticipated, and is true in 93% of cases. it is the bad kind which is called PDA. Pancreatic Ductal Adenocarcinoma. I prefer the older acronym meaning public displays of affection. lol
It is quite advanced and a common tumor marker Ca19-9 (blood test) was done. 0-37 in normal. Mine was 37,000. The highest level I have seen in literature. Lucky me, a record holder. This test will be repeated many times as my treatment progresses as it is an indicator of the success of chemotherapy. The way I look at it, is mine is so high that can only go down. lol
Next Tuesday, Dec. 8th I get a 'port" installed on my upper chest to access a large vein in my neck. Through this chemo will be given and blood drawn on into the future. Tuesday afternoon I get a CT scan of my chest and abdomen to determine the extent of metastasis. I all ready know it has spread through out my liver. I am not expecting good news based on my high Ca19-9 level.
Then the next day, Weds. I get my first 4 hour infusion of four chemo agents. In case you are interested the protocol is called FOLFIRINOX. I have selected this protocol because it is the most aggressive therapy. It also is the one that makes you the sickest (natch). Every 2 weeks you get a four hour infusion for a total of 15 infusions if it can be tolerated and doesn't kill you. That's at least 30 weeks of treatment or around 7 months. Hopefully this treatment will extend my life so I can attend my son Eric's HS graduation in June.
Remember I said before if you get no treatment life expectancy is 3 months. I've all ready used up a good bit of that time patiently waiting for the insurance approved cascade of ever more expensive diagnostic imaging. Things would have been very different if my GI doc had ordered a Ca19-9 early on when I first began experiencing symptoms in August. But I am trying not to look in the rearview mirror.
Thanks for sharing and being vulnerable.
ReplyDeleteThanks Jan. I am doing the blog for future suffers as well as family and friends.
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